We have landed and found dinner and the hotel. The Bellamy Brothers tour bus was outside in the morning. Here's a few photos of yesterday through 9 am.
It's been a while since I have blogged. As much as things have changed, much has remained the same. John is continuing to have very hard days. He's very tired and has roving joint pain still. We ran blood work and found low vitamin D again and low iron. His thyroid looks good, so it's just the nutrient deficiencies and the Lyme issues. The constant fatigue is tough to deal with, so he decided to take a hockey break. He handled it better than I did, as I cried on and off for days. It wasn't that he isn't playing hockey... it's the fact that he even had to choose to give up something he loves. We read in our local Lyme support group on Facebook that someone had cancelled an appointment with our doctor, so I tried to take the appointment 11 minutes after I saw the cancellation. Nope. Taken. That quickly. But, there was another slot, Tuesday at 9. It took me 2 hrs 10 min to get to the clinic during rush hour. ...
We were to arrive at the clinic at 11:30, but we are used to traffic and left early. We arrived early and they were happy to get started right away. The first thing we did was do their legal disclaimer on video. Since these treatments are not FDA approved and are considered experimental, they have to do what most LLMDs do - CYA with legal forms. Matt was very patient and answered all of our questions as we went through this. After this was done, it was "go time." First treatment was hyperthermia. John is their youngest patient so far so the hyperthermia wet suit was huuuuge. The suit is meant for an adult probably 6' tall and John is 4'6" with shoes. John put on his swimsuit and climbed into the suit. They had to prop up his feet and arms because when it fills with water, it starts pulling on his feet and arms. Since this was Day 1, they wanted to go gently with the temperature. The water was never above 103, and for the most part, it was at 101. T...
I think last time I blogged, we were going to push detox using Desbio Metal Detox and Mineral Rebalancing system. We had 3 great days, and boom. Crash. John wasn't feeling all that great again, and reported pressure behind his eyeballs, dizziness, and weakness. Eyeball pressure and migraines behind the eyeballs translates to one and only thing for me: IRON, particularly the storage iron form of ferritin. My father had low ferritin the month before he passed away. I have had low ferritin for at least 8 years. My oldest son, Patrick, has had low ferritin at least for 3 years. John has had low ferritin for at least 5 years. It's a thing with us. The only thing that has made my levels move in any significant fashion has been consuming betaine, acid pills that help the breakdown of foods in the stomach. Problem is, I have to remember to take it with each meal, and when everyone else is sick and I'm juggling their numerous su...
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